Saturday, August 23, 2008

3 three pounders and 1 almost there

I haven't had Internet access for awhile because I moved. Ronald McDonald House moved me to a real house. Hooray! They RM house has 21 bedrooms (yes with locks on the doors) with bathrooms, one great big nice kitchen, living room, dining room, TV room, play room, laundry room, and a game room. All 21 families share all this. It is a very nice house! Because the babies will be coming home at separate times and I have 4 of them, the people at Ronald McDonald allowed us to move into one of their 3 single houses. The house is a duplex and RM owns the whole thing. I have my own kitchen, bathroom, living room/dining room. It will be very nice once the babies come home. Mike isn't able to stay with me because of the dogs. Very frustrating for both of us! Sometimes our friend (Karen) stays with the dogs and Mike is able to stay with me. Thank you Karen!!!!!

I will figure out the Internet situation so that I can start posting regularly again and with pictures.
Now for the important stuff!

Anthony 1360 g which is 3 lbs even
Michael 1540 g which is 3 lbs 6 ozs
Jaileigh is also 1360 g and 3 lbs even
and Jakob is 1245 g this is 2 grams less than 2 lbs 12 ozs

Jakob and Jaileigh are at 7 cc/hr feedings. They have been taken off their lipids and TPN. They no longer need the extra nutrition because they are eating normal feeds. They will be able to have their PICC lines removed after they finish their Fluconazole (diflucan). This is a drug they have been receiving since birth to treat for any possible fungals they would get. Anthony and Michael are both at 5 cc/hr and will be caught up soon.

The doctor is keeping them at continuous feeds for awhile longer to keep away any possibility of getting NEC (necrotizing enterocolitis). NEC usually occurs in babies that weigh less than 1500 grams. The tissue in the digestive tract dies.

Here are SOME of the things are babies go through on a regular basis:

* TPN lab draws on Wednesdays
* The RT (respiratory therapists) were doing blood gas labs every day, then every other and now on Wednesdays and Saturdays.

* Bili levels on the gas lab days.
* Glucose tests- every night.
* Vitamin A shots Monday, Wednesday, and Friday
* Caffeine- given through their PICC every night
* Difluconazole- every 48 hours for 2 weeks and then every 24 hours
* Every 6 hours they get bactriban on their noses to prevent break down from the nasal cannula's
* Glycerine suppository every 24 hours if they have not stooled on their own

They have a feeding tube down their throat. This gets changed every morning. Sometimes the babies will pull it out and they will have to replace it a second time. They are being monitored for oxygen saturation, heart rate, and respiration rate constantly. Blood pressure is taken once a day during day shift.


A positive they get to look forward to is kagarooing. What a life they have!

I believe that Heavenly Father blesses them that they will not remember any of the bad things that have happened to them. They will only remember the good.

6 comments:

Sammy'smommy said...

So glad to hear the babies are doing so well. Thanks for being so dedicated keeping us all posted. I will continue to pray for all of you. God bless all of you.

Sonja said...

That is wonderful that you are now in a house. I'm sure it is very exciting for the thought of the babies joining you. :)

Thank you for the update on the wee ones and also for the knowledge of what they go through daily. I can say from experience that they will not remember the "bad" stuff they had to endure. My son was a preemie and I was thankful God had taken that memory away.


Keep kangarooing and get some rest. Mom needs to take care of herself also so she can continue to visit and be involved in the lives of the precious gifts that God has given. God Bless you and your husband.

Morgan said...

Keep growing babies. Glad to hear you got a new place to stay.

Misty said...

How wonderful about the house! THat is so awesome! THey sound like they are doing great.
I agree that it is a blessing that they don't remember what happens. You will find before long, after a few months of them being home and healthy, alot of it you won't remember.
I'm so happy for you! Keeping you in my prayers,
Misty

michael said...

Amber,
you are doing such a great job. I am so proud to be married to you. I love you.

KSDallas said...

Wow, that is a lot of stuff for those little babies. And don't worry - they won't remember any of this. They will only remember the bond you share with them. Love goes a long way.

That is great about the new house. Pretty soon it will be filled with babies!

KS in Dallas